PCN469 DISEASE SPECIFIC PATIENT-REPORTED OUTCOME (PRO) INSTRUMENTS FOR HEMATOLOGIC MALIGNANCIES (HM)

Patient-Reported Outcome Instruments in Spine Surgery.

STUDY DESIGN A critical review of the current literature. OBJECTIVE The purpose of this study was to determine frequency, trends, and methods of utilization of spine-related PROIs over the last 10 years. SUMMARY OF BACKGROUND DATA Patient-reported outcome instruments (PROIs) have become the gold standard to assess the efficacy of various medical and surgical treatments. Currently, however, ...

Cross-cultural adaptation and linguistic validation of age-group-specific haemophilia patient-reported outcome (PRO) instruments for patients and parents.

Currently, haemophilia care aims to provide the best possible quality of life for individuals living with this chronic disease. Many factors are known to influence treatment adherence, including treatment satisfaction. Health-related quality of life (HRQoL) and treatment satisfaction are, therefore, important outcomes in clinical trials and clinical practice. As individuals' perception of their...

Disease-Specific Biomarkers for Early Diagnosis of Hematologic Malignancies

Prior to diagnosis, patients with haematological cancers often have multiple primary care consultations, resulting in Diagnostic Delay. They are less likely to be referred urgently to hospital and often present as emergencies. Howell et al. [1] examined patient perspectives of time to help-seeking and diagnosis, as well as associated symptoms and experiences using the following method; The UK’s...

Utility of Patient-Reported Outcome Instruments in Heart Failure.

Patient-reported outcomes (PRO) are defined as reports coming directly from patients about how they feel or function in relation to a health condition and its therapy. Although there are numerous compelling reasons why PRO could be an important help in clinical care, they have not evolved into clinical tools integrated into care. The purpose of this review is to assess existing PRO instruments ...

Call for a disease-specific patient-reported outcome tool in adult congenital heart disease.